Just got discharged from hospital...

[Irukapooka]

Hey guys. Since Wednesday, I have been admitted to the hospital for my crohn's disease. It was horrible. Most of you know about my disease and that I have been to the hospital for it before to get medications, but my disease just got out of control for no reason. Scared the hell out of me. And scared the hell out of everyone else. I had to be admitted. I'm lucky I got out today.

I don't really like talking about the disease because I don't want people to think that I am a "hey look at me and give me pity!" person. But I really need some help here and thought I could turn to this community.

I keep throwing up and bleeding. The hospital wanted me to try to stay on a pretty bland diet. For a few years, I have been trying to keep a mainstream easy going diet for my body to try to help control the pain of my disease and to prevent the attacks the best I can.

Does anyone have any knowledge of crohn's disease? Or would be able to find a good diet list? I realize that not everything works for every crohn's disease patients. But I just want as much help as I can.

Thank you for your help everyone. I really do appreciate it.

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[EmuFan23]

I am really sorry that you have to struggle with this.. I can imagine that it's never easy to have an illness, regardless what it is. Heck, i have none, but half my face is paralyzed, and that's hard enough. I'm afraid that i don't have a specific answer to your question, but i did find this: http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001295/

...which wasn't hard, i just googled it and it was the first link. So don't thank me for that crap But i can imagine that you would have to eat food that isn't hard to digest, and water is definitely important. And i probably wouldn't eat too fast, i think i would go easy on it. Nothing strong. Eat REAL food, no artificial crap, at all. And i would probably stay the HELL away from soda. But that's just me, and you probably have way more answers than me.

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[aceloop]

Originally Posted by EmuFan23

I am really sorry that you have to struggle with this..

.. im not so good with stuff like this.


but what i found was that. you should keep a close eye on your diet.

http://www.webmd.com/ibd-crohns-dise...ease-diet-plan

http://health-tools.health.msn.com/l...crohns-disease



you should maybe read some medical books on the disease, so you have a better understanding of the disease and how to deal with it.

[Ahielia]

But I just want as much help as I can.

Here's a hug Tushi<3!

*hugs*

Hope you feel better :3

[Paratech]

We're sorry to hear about it and will pray for you!

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[Blue Thunder 25]

I've been eating fruits and vegetables for 11 years now, no meat and sodas, drinking 10 glasses of water a day, plus I never drink nor smoke and especially never stay up late , thanks to that habit I never caught even a cold or cough for a decade and it also helps slows down the aging process , even my friends doesn't believe it, I look 7 years younger than them. Anyway I hope you get better soon ^_^

And I forgot to add that during morning, I take my morning walk for 5 Kilometers for my exercise.

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Last edited by Blue Thunder 25; June 30th, 2012 at 07:50..

[blueshogun96]

Originally Posted by Paratech

We're sorry to hear about it and will pray for you!

Seconded

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[Hard core Rikki]

Consulting a local dietetician or similar council familiar with your file might be to advise.

For now, you might want to consider a low residue diet (short term, as nutrient complements should be necessary).

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[Prafull]

Get well soon Tushy. Take very good care of yourself and remeber you are always in my prayers.

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[Fadingz]

I'm sorry to hear that, hope you get well soon!
Regardless, I would suggest consult an actual nutritionist.
You need to put both your physical and mental health into consideration.
Diet is not a book that everyone follows.
You need to put your daily routine, body weight, muscle ratio, hormones, nutrients, and etc. into consideration.
What works for others might not work for you, and vice versa.
Consult the opinion of an actual professional to give you your personal suggestions for diet.

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[Irukapooka]

Originally Posted by Prafull

Get well soon Tushy. Take very good care of yourself and remeber you are always in my prayers.

Originally Posted by Ahielia

Here's a hug Tushi<3!

*hugs*

Hope you feel better :3

Originally Posted by Paratech

We're sorry to hear about it and will pray for you!

Originally Posted by blueshogun96

Seconded

Thank you so much Prafull, Ahielia, Paratech and Shogun.

Originally Posted by EmuFan23

I am really sorry that you have to struggle with this.. I can imagine that it's never easy to have an illness, regardless what it is. Heck, i have none, but half my face is paralyzed, and that's hard enough. I'm afraid that i don't have a specific answer to your question, but i did find this: http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001295/

...which wasn't hard, i just googled it and it was the first link. So don't thank me for that crap But i can imagine that you would have to eat food that isn't hard to digest, and water is definitely important. And i probably wouldn't eat too fast, i think i would go easy on it. Nothing strong. Eat REAL food, no artificial crap, at all. And i would probably stay the HELL away from soda. But that's just me, and you probably have way more answers than me.

Thank you so much for your search and advice. I try not to eat anything artificial and I've trained my body to kind of "repel" soda pop for about three years now. I rarely have soda anymore. The sugar is too strong. If I ever want a "fizzy" drink, I grab some sparkling water and 100% real fruit juice and mix them together. It's fizzy and good for your body but also tastes amazingly good and refreshing.

I'll take a look at the links here soon.

Originally Posted by aceloop

.. im not so good with stuff like this.

but what i found was that. you should keep a close eye on your diet.
http://www.webmd.com/ibd-crohns-dise...ease-diet-plan
http://health-tools.health.msn.com/l...crohns-disease
you should maybe read some medical books on the disease, so you have a better understanding of the disease and how to deal with it.

You know, that's a great idea for me to read some medical books on crohn's disease. I've never really thought of that before. But I am planning on going to a local used book store and see if there are any books that are like that. Thank you for the suggestion and also the links. I'm going to check the links out very soon.

Originally Posted by Blue Thunder 25

I've been eating fruits and vegetables for 11 years now, no meat and sodas, drinking 10 glasses of water a day, plus I never drink nor smoke and especially never stay up late , thanks to that habit I never caught even a cold or cough for a decade and it also helps slows down the aging process , even my friends doesn't believe it, I look 7 years younger than them. Anyway I hope you get better soon ^_^

And I forgot to add that during morning, I take my morning walk for 5 Kilometers for my exercise.

Thank you for wishing me well. But that diet that you have could not work for me. My Crohn's disease wasn't something that was caused from any health mistakes. I've always had the gene but when I had a very stressful event, the disease became active.

I also do not drink nor smoke, which are both really good things that I shouldn't do. I love fruits and vegetables but those two can be some of the worst things for me to eat, especially when they're raw because it rips up my intestines even more. I can't really exercise at this time either because of my stamina. ^^; Sometimes within a few months, I can lose up to 40 pounds and then turn around and gain 40 pounds back due to dehydration and nausea and not keeping food down.

But you do have some really good tips. I should start to drink more glasses of water a day. That would definitely help me out a bit.

Thank you so much for your suggestions.

Originally Posted by Hard core Rikki

Consulting a local dietetician or similar council familiar with your file might be to advise.

For now, you might want to consider a low residue diet (short term, as nutrient complements should be necessary).

Thank you. I need to take more complete vitamins and that may help me become a little bit healthier and it would insure that I got a lot of nutrients in my system. There's also less of a chance for me to vomit them up.

I would love to see a dietician but I don't have the finances for it and nor do I think it would help me so much unless if the person is specialized in a Crohn's disease diet. I'll see if some person like that is around my area though. It's worth a shot for me to check out. ^^

Originally Posted by Fadingz

I'm sorry to hear that, hope you get well soon!
Regardless, I would suggest consult an actual nutritionist.
You need to put both your physical and mental health into consideration.
Diet is not a book that everyone follows.
You need to put your daily routine, body weight, muscle ratio, hormones, nutrients, and etc. into consideration.
What works for others might not work for you, and vice versa.
Consult the opinion of an actual professional to give you your personal suggestions for diet.

Aw thank you so much Fadz. Like I told Rikki, "I would love to see a dietician but I don't have the finances for it and nor do I think it would help me so much unless if the person is specialized in a Crohn's disease diet. I'll see if some person like that is around my area though. It's worth a shot for me to check out."

And you're right, there are many factors that I need to consider with my diet, hence why I am trying to find more advice from it. It's not like you are dieting to lose weight and know not to eat fat or artificial foods, or other such things. I need to be very careful. This is going to be a long and hard process for me to realize the perfect diet for me. It's already taken a few years and I am positive that it will take me more than that to get a more defined diet. I just wanted some advice so that I could kind of get a head start on the diet, you know?

I know Temple Grandin had Crohn's disease even though doctors could not diagnose it at the time because of the era at the time. But she kept up with her diet with cups of jello and cups of yogurt. That was pretty much her diet and I don't want to do that because I want a more nutrient enriched diet and I know it will improve my health and also curve my attacks.

Thank you everyone for your advice and prayers once again. <3

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[Xianrad]

I hope you get well soon! I have have never heard of Crohn's disease before. A low sugar diet may help though I wouldn't really know.

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[redlofredlof]

Get well soon pooka.

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[Strike105X]

How did i missed this thread ? Hopefully you will get better pooka. Wish you good luck.

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[Irukapooka]

Thank you again for your love and support guys.

I'm happy to report that the new steroid they make me take has already started to help. They usually have me use this particular steroid after I have to be rushed into the hospital. It's to reboot the system. I only use it for about a week because of how strong it is. Seems like it's working.

Still working on a pretty bland diet though. I only just barely started to drink milk again and incorporated some chicken in my diet. Tonight I had a hamburger. I shouldn't have had it but what kind of American would I be if I didn't eat one on July 4th? Lol.

Just sticking with a diet of a couple of a bananas, a bowl of plain white rice (they think that bleached rice would be better for my system now instead of brown), a cup of jello and lots of fluids. I'm trying to branch out slowly and carefully with what I eat and the amount of physical exertion I do.

Has anyone here heard of rice milk? Dairy isn't really something I should have in my diet and so I've been curious of maybe trying rice or almond milk. Almond is very sweet (at least the ones I've tried) and I have never had rice milk before. Has anyone tasted it? Is there a difference between the taste of real dairy milk and rice milk? It doesn't sound very appetizing to me.

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[Fadingz]

Rice milk is okay.
I love Asian soymilk, not American soymilk.
and yes, the two taste VERY different.
There are machines that can make soy milk for you, you just need to buy some soybeans.
Asian soymilk taste like the ones made from the machine, so I do not know what they did to the American soymilk lol...
sweet bean curd is awesome as well, you can either eat it warm or cold.

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[Grv]

Hi Bree. Finding subsitutes (e.g. for dairy) might be somewhat disheartening at first, but you just have to remember that every change you can get used to, even when it involves taste.

Originally Posted by Irukapooka

Does anyone have any knowledge of crohn's disease? Or would be able to find a good diet list? I realize that not everything works for every crohn's disease patients. But I just want as much help as I can.

My mother had Chron's. I'm not going to lie to you: there's a very good chance you'll have to learn to live with the worst of these pains for the rest of your life, as they will almost certainly keep coming back despite an optimal diet. Sometimes after long periods of time. Sometimes only a few nights every few years. At least nowadays, you can survive Chron's without the need for a regular recurring operation, thanks to ongoing developments in treatment. Just make sure you don't miss the regular check ups.

My mother's diet was: fiber-rich, absolutely no lactose, and a bare minimum of fat. Straying from it definitely made it worse in her case.

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[Hy-Def]

Im sorry to hear that Pooka... Ill keep you in my prayers. My suggestion is steamed vegetables. Spinach especially, or any leaf like vegetable. For the fruits you can make smoothies to avoid eating them raw. No milk of course. Lots of water also.